Father’s determination to buy stairlift for disabled son

The Kenny family - left to right - father Mark, 37, Shay, 2, Braden, 7, mother Jackie, 37 and Darragh, 4.
The Kenny family - left to right - father Mark, 37, Shay, 2, Braden, 7, mother Jackie, 37 and Darragh, 4.

A man from Aylesbury whose young son suffers from a rare brain condition is seeking funds for a new stairlift to help improve his quality of life.

Two-year-old Shay Kenny was diagnosed with PVL (Periventricular Leukomalacia), which generally affects speech and mobility, at the age of 14 months.

As well as suffering from PVL, Shay is also affected by cerebral palsy and epilepsy, as well as vision problems, which mean he only has 10% vision out of his right eye,

His father Marc Kenny, 37, said: “Shay is a very determined little boy who has astounded his peers at the speed of his recovery. He is now using sign language and he is able to express himself so he is progressing really well.”

Mr Kenny added: “I have had to fight very hard to get where we are today and I have faced a lot of obstacles along the way.

“I lost my job with Royal Mail, where I had worked for 15 years because I had taken a lot of time off work.

“I also lost my house because we got into debt and this all happened within the space of a year.”

Mr Kenny, from Laverick Road, is now turning his attention to organising a fundraising event for Shay which is being held on Saturday, March 23, 2014 at Rivets Sports and Social Club between noon and 5pm.

To offer help with the fund-raising event next year or to donate to the trust fund, contact Mr Kenny on 01296 291183 or email m.kenny2@sky.com.